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Project

Theory-based self-management to improve bladder health in persons with SCI

Funder: Craig H Neilsen Foundation

Funding period
USD 299 K
Funding amount
Abstract
Persons with spinal cord injury (SCI) are at risk for many preventable secondary conditions. Bladder dysfunction is ranked as a top concern by persons with SCI. This condition is disabling medically, physically and socially, and increases healthcare utilization. Within Ontario, approximately 50% of ER visits within the first year post discharge are due to urinary tract infections. There is an increasing realization of the need and potential benefit associated with improved person-focused care through self-management interventions that are consistent with the expanded, chronic care model. Traditional applications of self-management are focused on chronic conditions. However, there is an emerging appreciation of the relevance of these innovations to care systems focused on persons with SCI. The proposed proof of concept is a 2-year, 2-phase self-management intervention based on the Health Action Process Approach with an integration of patient-reported outcomes (PROs) to promote bladder health in persons with SCI. Firstly, the impact of this bladder health program on the following outcomes will be assessed: (a) incidence of urinary tract infections (b) compliance with bladder care-related behaviours (c) self-efficacy for skills and activities (d) knowledge retention. Secondly, we will determine the utility of PRO’s for use in this and future studies examining patient-centred care with the aim of facilitating self-monitoring, assessing the effectiveness of self-management interventions, and construct validation across PRO’s. Directly in line with the Foundation’s core mission, this intervention promotes improvement of quality of life and supports the development, testing and adoption of effective interventions. Moreover, the project will examine the use of PROs, both for self-monitoring and for evaluation. This will serve to validate and inform the utility of these outcome measures for future psychosocial research – also of primary importance to the Foundation.Led by a multi-disciplinary team consisting of not-for-profit organizations, consumers, experts and front-line clinicians with a history of collaboration, we will develop and test this unique approach to bladder self-management for persons with spinal cord injury. (CHN: PSR chn:wdg)
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System

Categories
  • FOR (ANZSRC)

    1117 Public Health and Health Services

  • RCDC

    Injury (total) Accidents/Adverse Effects

  • RCDC

    Injury - Trauma - (Head and Spine)

  • RCDC

    Health Services

  • RCDC

    Mind and Body

  • RCDC

    Spinal Cord Injury

  • RCDC

    Clinical Research

  • RCDC

    Neurodegenerative

  • RCDC

    Urologic Diseases

  • Health Research Areas

    Health services & systems

  • Broad Research Areas

    Public Health