Please enable JavaScript or talk to your local administrator to get JavaScript enabled.

Project

Creating a Training Program for Enhancing Relations Between Informal Caregivers and Adults with SCI

Funder: Craig H Neilsen Foundation

Funding period
USD 128 K
Funding amount
Abstract
Adults with spinal cord injury (SCI) typically manage their own needs; however, informal caregivers also play an important role in meeting these needs. Informal caregivers have been shown to improve adults with SCI’s quality of life; however, the burden and pressure associated with providing care makes them susceptible to depression and stress. Research suggests that training programs for informal caregivers, along with strong interpersonal relationships with their care recipient, can help reduce these negative outcomes. Self-Determination Theory (SDT) is a motivational theory that explains how the social interaction quality leads to outcomes. SDT posits that informal caregivers’ supportive interpersonal behaviors can lead to need satisfaction, autonomous motivation, and positive outcomes for their care recipients. Research also supports that interpersonal behavior training can be an effective way to increase the use of these behaviors in a relationship. To date, no study has applied SDT to understand the interpersonal relationships among SCI informal caregivers, or to develop a training resource for these caregivers. The goal of this proposal is to create an SDT guided community-based training resources for informal caregivers of adults with SCI. The training guide will focus on strategies for caregivers to incorporate increased supportive interpersonal behaviors into their interactions with their care recipients. Phase 1 will increase knowledge about caregiver interpersonal behaviors and Phase 2 will synthesize and adapt that knowledge through the resource development. In Study 1 (Phase 1), a cross-sectional design will confirm that perceived caregiver supportive interpersonal behaviors lead to increased need satisfaction, autonomous motivation, and positive outcomes for a sample of adults with SCI (n = 90). Study 2 will use dyadic qualitative interviews with pairs of informal caregivers and care recipients (n = 5 pairs) to explore how their interaction quality leads to positive outcomes for caregivers, as well as identify strategies for implementing supportive behaviors. Finally, in Phase 2 (Study 3), we will use working group and Delphi-styled consensus methodologies to co-create a training program with members of the SCI community. A sample of 8-10 caregiver/care recipient pairs will participate in both methodologies. It is hypothesized that perceptions of caregiver supportive interpersonal behaviors will promote positive outcomes in adults with SCI (Study 1) and caregivers (Study 2). It is also anticipated that members of the SCI community will identify a number of strategies for incorporating increased supportive behaviors into their relationships (Study 2). Finally, it is expected that this research will generate an effective training guide for informal caregivers, co-developed by members of the SCI community, that will be ready for implementation and evaluation (Study 3). The proposed novel training guide has the potential to not only impact the well-being of adults with SCI, but the well-being of people who care for them as well. (CHN: PSR chn:wdg)
Similar projects All >
Sorted by: Start Date
Project list item
Validation of the Spinal Cord Injury Functional Index (SCI-FI) Performance-By-Observation Measure

Craig H Neilsen Foundation to Mary Jane Mulcahey, Daniel Graves, Michael P Stillman

USD 600,000
2019 - 2022
Project list item
Metabolic reprograming of glial cells promotes axon regeneration in the CNS

Craig H Neilsen Foundation to Yuanquan Song

USD 300,000
2019 - 2021
Project list item
Neurofeedback to Assist Self-Regulation of Neuropathic Pain Post-SCI

Craig H Neilsen Foundation to Jeanne M. Zanca, Bing Yao, Jeffrey Zhang, Tibor Auer, Juan Segovia, Trevor Dyson-Hudson, Glenn Wylie

USD 299,000
2019 - 2021
Project list item
Spinal Cord Stimulation for Restoration of Bladder Function

Craig H Neilsen Foundation to Warren M Grill

USD 300,000
2019 - 2021
Project list item
The intraspinal serotonergic system regulates micturition reflexe after SCI

Craig H Neilsen Foundation to Yu-Shang Lee

USD 300,000
2019 - 2021

System

Categories
  • FOR (ANZSRC)

    1117 Public Health and Health Services

  • FOR (ANZSRC)

    1701 Psychology

  • RCDC

    Injury (total) Accidents/Adverse Effects

  • RCDC

    Injury - Trauma - (Head and Spine)

  • RCDC

    Spinal Cord Injury

  • RCDC

    Behavioral and Social Science

  • RCDC

    Clinical Research

  • RCDC

    Neurodegenerative

  • Health Research Areas

    Clinical

  • Broad Research Areas

    Health Services Research