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Project

Education Modules for the First Steps After SCI

Funder: Craig H Neilsen Foundation

Funding period
USD 37 K
Funding amount
Abstract
AbleThrive is a one-stop platform that features curated resources about life, relationships, activities and travel for people with paralysis and their families to adapt and thrive. We reach 120,000 unique visitors online every month and we're currently shared in 15 SCI rehab hospitals in 4 countries. Education Modules for the First Steps After SCI addresses patient and family needs immediately after a new injury with high-quality information delivered efficiently via AbleThrive.com. People with a new SCI and their families are often asking the same questions, completely lost in a new world of terminology and mobility. By working with top SCI doctors and facilities, we will synthesize brand new education models in English, Spanish and Chinese on SCI basics including Autonomic Dysreflexia, Bowel & Bladder care, Pain, Skin, Sexual function, Community, Trauma healing, Diet and more on AbleThrive.com. As a patient is signed up for AbleThrive through one of our hospital partners, he or she will be guided through easy to read and watch online modules. For patients in rehab hospitals, this is a complement to in-person programs. For those who do not have insurance or do not go to rehab, it's an opportunity to get Model Systems level expertise delivered for free. Users will work through suggested modules and track their progress to take the guesswork out of what to do post-injury. A successful pilot year gives us a foundation to scale this program to SCI hospitals around the world for families facing SCI to get through the first few months post injury and have a foundation from which to tackle what it takes to adapt and establish a new normal.

Our measurable goals:
- Develop 10-15 education modules (including video and text) that cover SCI basics in English, Spanish
and Chinese
- Create a partnership with 50 hospitals that share these modules with their patients
- Reach 5000 registered users who track their progress through the modules with their AbleThrive
account

The information families need after a spinal cord injury is well known to industry professionals and is scattered around the internet, but families are still often overwhelmed and don't know where to turn. AbleThrive's innovative approach to the development and delivery of patient and family education ensures families can spend more time focusing on what's important and less time searching online. We have a network of doctors, organizations and people with SCI who believe in this project and will be intricately involved in developing our modules and ensuring a balance of medically accurate and reliable information delivered with a human touch. This is an opportunity to finally have 'one place to go' to start a journey with spinal cord injury, that ensures
everyone with a new injury is on a pathway to success. (CHN: COandI chn:wdg)
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System

Categories
  • FOR (ANZSRC)

    1117 Public Health and Health Services

  • RCDC

    Injury (total) Accidents/Adverse Effects

  • RCDC

    Injury - Trauma - (Head and Spine)

  • RCDC

    Neurosciences

  • RCDC

    Spinal Cord Injury

  • RCDC

    Neurodegenerative

  • HRCS HC

    Neurological

  • HRCS HC

    Injuries and Accidents

  • Broad Research Areas

    Health Services Research