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Project

SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Funder: Craig H Neilsen Foundation

Funding period
USD 400 K
Funding amount
Abstract
Project background: Individuals with spinal cord injury (SCI) have to learn to manage their health, but also often have to change the approaches they use to cope with new challenges. While self-management programs have been developed for other conditions, they are often offered only in-person or do not take into account the unique experience of individuals with SCI. The rural nature of our region as well as the complexity of transportation and engaging with others at a distance after SCI create barriers to accessing self-management training and experts in SCI care. While online SCI forums provide dialog and support, an evidence-based approach to effective peer-led online self-management education after SCI is not currently available. Ultimately, the ability to train peers with SCI to direct an online self-management program with support from SCI experts (SCI Thrive) would address an unmet need in our region as well as across the country where many live at a distance from peers, SCI experts, and/or self-management training. Hypotheses: 1.Individuals who participate in SCI Thrive will report improved quality of life compared to those in the wait-list control group.2.Individuals who participate in SCI Thrive will report increased health-related self-efficacy and community participation compared to those in a wait-list control group.3.Individuals who participate in SCI-Thrive (intervention or wait-list control completers) will maintain improvement seen at post-treatment for 3 months post-completion. Specific Aims:Aim 1: To determine if SCI Thrive can lead to improvement in quality of life compared to those in a wait-list control group. Aim 2: To determine if SCI Thrive can increase self-efficacy and participation compared to a wait-list control group.Aim 3: To assess whether individuals can maintain improved outcomes at 3 months post completion of the intervention.Aim 4: Evaluate participant satisfaction with the program and process variables (number of sessions completed, goal attainment, etc.) to determine resources needed for sustainability of the program. Study design/Methodology: We plan to conduct a randomized controlled trial with a wait-list control group to determine the efficacy of SCI Thrive to improve quality of life, self-efficacy, and community participation. Measures include the Perceived Quality of Life Scale, the Self-Efficacy for Managing Chronic Disease 6-item Scale, and the Life Space Assessment. Expected results: If our hypotheses are confirmed, SCI Thrive can be moved into the community for anyone with SCI who may benefit from learning new, refreshing, or applying skills to a new goal. We will partner with a local SCI organization that focuses on connecting individuals and their families to others with SCI to take over the program while we continue to provide SCI expertise as needed. Relevance: The proposed study is in line with the mission and vision of the Craig H. Neilsen Foundation as the aim is to improve the quality of life for those affected by and living with SCI which will allow them to live full and productive lives as active participants in their community. (CHN: PSR chn:wdg)
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System

Categories
  • FOR (ANZSRC)

    1117 Public Health and Health Services

  • RCDC

    Injury (total) Accidents/Adverse Effects

  • RCDC

    Injury - Trauma - (Head and Spine)

  • RCDC

    Neurosciences

  • RCDC

    Mind and Body

  • RCDC

    Spinal Cord Injury

  • RCDC

    Behavioral and Social Science

  • RCDC

    Clinical Research

  • RCDC

    Clinical Trials and Supportive Activities

  • RCDC

    Neurodegenerative

  • HRCS RAC

    6.6 Psychological and behavioural

  • HRCS RAC

    7.1 Individual care needs

  • Health Research Areas

    Health services & systems

  • Broad Research Areas

    Health Services Research