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Project

Collaborative Education and Caregiving Program

Funder: Craig H Neilsen Foundation

Funding period
USD 41 K
Funding amount
Abstract
The Collaborative Education and Caregiving Program is a partnership between KSCIRC and Spalding University to create a pool of caregivers with education and training on spinal cord specific needs and challenges. Spalding faculty will provide hands-on instruction and application for Certified Nursing Assistant students with a clinical focus on identifying the warning signs of autonomic dysreflexia and performing bowel and bladder care. The program will pay for the cost of the training to better equip these students to fully meet the needs of people living with SCI. Patients will have the ability to recruit from the pool of trained caregivers.
This program is an innovative solution to the ongoing problem facing people living with SCI in the state of Kentucky; current regulations limit the ability of caregiving agencies from meeting the entire continuum of caregiving needs of people requiring bowel and bladder management. Laws in Kentucky prohibit anyone without a practical nursing level licensure (LPN) from performing medically invasive or skilled procedures (catheterization and bowel programs). The only options for persons living with SCI in Kentucky are to hire a nurse for bowel/bladder management in addition to employing a caregiver to meet their other needs (bathing, feeding, dressing, etc.) OR privately hire and train a caregiver on their own. Neither of these are acceptable solutions; the former is expensive and requires patients to contract with two separate entities to meet all their needs. The latter option puts an already vulnerable population at greater risk by hiring a caregiver that has limited or no medical background and no employer oversight. Caregivers hired outside of an agency setting also tend to be unreliable and cannot offer the flexibility or continuity of care that a team of caregivers employed through a medical staffing agency can provide.
The goal of this program is to improve the quality of life and reduce adverse medical events for persons living with chronic SCI by connecting them with trained, reliable, and affordable caregivers. The other outcome of this program will be to utilize the data collected over the grant funded time period to demonstrate to Kentucky lawmakers that caregivers receiving this specialized training can safely and effectively perform the entire continuum of caregiving tasks and improve outcomes for patients with SCI. The data on patient outcomes will be used to influence legislative/policy change by amending current caretaking regulations in Kentucky.
This program aligns with the Neilson Foundation's mission of improving quality of life by serving persons living with SCI in the area of rehabilitation. This program directly benefits persons living with SCI by removing barriers to setting up quality and affordable care as well as improving confidence and emotional wellbeing knowing that all caregiving needs are being met by a competent and knowledgeable caregiver. (CHN: COandI chn:wdg)

 
239
Projects
USD 29.6 M
Aggregated funding amount
USD 124 K
Average funding amount
Project list item
Validation of the Spinal Cord Injury Functional Index (SCI-FI) Performance-By-Observation Measure

Craig H Neilsen Foundation to Mary Jane Mulcahey, Daniel Graves, Michael P Stillman

USD 600,000
2019 - 2022
Project list item
Spinal Cord Stimulation for Restoration of Bladder Function

Craig H Neilsen Foundation to Warren M Grill

USD 300,000
2019 - 2021
Project list item
Barriers and facilitators to effective bowel care in individuals with spinal cord injury

Craig H Neilsen Foundation to Victoria Elizabeth Claydon, Chris McBride, Rhonda Willms, Heather Gainforth, Maureen McGrath, Vera-Ellen Lucci

USD 95,000
2019 - 2021
Project list item
Pain education for improving pain health literacy and quality of life after spinal cord injury

Craig H Neilsen Foundation to Eva Widerstrom-Noga, Lindsey Calle-Coule, Alberto Martinez-Arizala, Kimberly Anderson, Salome Perez

USD 400,000
2019 - 2022
Project list item
SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Craig H Neilsen Foundation to Jeanne M. Hoffman, Amy Starosta

USD 400,000
2019 - 2022
Project list item
Craig Caregiver Assessment of Rewards and Effort (C2ARE) - Validation of a new tool to assess caregi

Craig H Neilsen Foundation to Susie Charlifue, Kimberley R. Monden, Richard Goldstein, Susan Charlifue

USD 400,000
2019 - 2022
Project list item
Caregiver Adaptation to Caring for a Child with SCI Undergoing Activity-based Therapy

Craig H Neilsen Foundation to Andrea L Behrman, Deborah Davis, Kyle Brothers

USD 400,000
2019 - 2022
Project list item
Treatment of Depression Post-SCI: Retrospective Analysis and Feasibility Trial

Craig H Neilsen Foundation to Catherine Jefferson VanDerwerker, Kit Simpson, Chris Gregory, James Krause

USD 150,000
2019 - 2021
Project list item
Pathways to learning: a unique recreational exercise certification program for individuals with SCI

Craig H Neilsen Foundation to Ray de Leon

USD 49,837
2018 - 2019
Project list item
Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

Craig H Neilsen Foundation to Heather Taylor

USD 300,000
2018 - 2021
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Closing the Primary Care Gap: Building Healthcare Provider Capacity to Better Serve Women with SCI

Craig H Neilsen Foundation to Chloe Slocum

USD 276,345
2018 - 2021
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Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Craig H Neilsen Foundation to Andrei Krassioukov

USD 300,000
2018 - 2021
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ARTspace Houston

Craig H Neilsen Foundation to Rafferty Laredo

USD 44,130
2018 - 2019
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Adapting rowing ergs: customized solutions for people with SCI

Craig H Neilsen Foundation to Carolyn Sparrey

USD 55,000
2018 - 2019
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ValleyGO! Adaptive Sports Program

Craig H Neilsen Foundation to Teri Todd

USD 72,951
2018 - 2019
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Northwest Wheelchair Tennis Association Event Support and SCI Player Development.

Craig H Neilsen Foundation to John McClaran

USD 35,200
2018 - 2019
Project list item
Adventure Awaits - Outdoor Inclusion in the Pacific Northwest

Craig H Neilsen Foundation to Pat Addabbo

USD 33,130
2018 - 2019
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Ability KC Adaptive Driving Program Expansion

Craig H Neilsen Foundation to Sarah Murphy

USD 88,378
2018 - 2019
Project list item
Off-Road Accessible Mountain Bike Program for Bike Town USA

Craig H Neilsen Foundation to Julie Taulman

USD 48,000
2018 - 2019
Project list item
Providing community-based adaptive sports to improve the quality of life of those living with SCI

Craig H Neilsen Foundation to Dave Simonson

USD 100,000
2018 - 2019
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