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Project

Collaborative Education and Caregiving Program

Funder: Craig H Neilsen Foundation

Funding period
USD 41 K
Funding amount
Abstract
The Collaborative Education and Caregiving Program is a partnership between KSCIRC and Spalding University to create a pool of caregivers with education and training on spinal cord specific needs and challenges. Spalding faculty will provide hands-on instruction and application for Certified Nursing Assistant students with a clinical focus on identifying the warning signs of autonomic dysreflexia and performing bowel and bladder care. The program will pay for the cost of the training to better equip these students to fully meet the needs of people living with SCI. Patients will have the ability to recruit from the pool of trained caregivers.
This program is an innovative solution to the ongoing problem facing people living with SCI in the state of Kentucky; current regulations limit the ability of caregiving agencies from meeting the entire continuum of caregiving needs of people requiring bowel and bladder management. Laws in Kentucky prohibit anyone without a practical nursing level licensure (LPN) from performing medically invasive or skilled procedures (catheterization and bowel programs). The only options for persons living with SCI in Kentucky are to hire a nurse for bowel/bladder management in addition to employing a caregiver to meet their other needs (bathing, feeding, dressing, etc.) OR privately hire and train a caregiver on their own. Neither of these are acceptable solutions; the former is expensive and requires patients to contract with two separate entities to meet all their needs. The latter option puts an already vulnerable population at greater risk by hiring a caregiver that has limited or no medical background and no employer oversight. Caregivers hired outside of an agency setting also tend to be unreliable and cannot offer the flexibility or continuity of care that a team of caregivers employed through a medical staffing agency can provide.
The goal of this program is to improve the quality of life and reduce adverse medical events for persons living with chronic SCI by connecting them with trained, reliable, and affordable caregivers. The other outcome of this program will be to utilize the data collected over the grant funded time period to demonstrate to Kentucky lawmakers that caregivers receiving this specialized training can safely and effectively perform the entire continuum of caregiving tasks and improve outcomes for patients with SCI. The data on patient outcomes will be used to influence legislative/policy change by amending current caretaking regulations in Kentucky.
This program aligns with the Neilson Foundation's mission of improving quality of life by serving persons living with SCI in the area of rehabilitation. This program directly benefits persons living with SCI by removing barriers to setting up quality and affordable care as well as improving confidence and emotional wellbeing knowing that all caregiving needs are being met by a competent and knowledgeable caregiver. (CHN: COandI chn:wdg)

 
227
Projects
USD 30.0 M
Aggregated funding amount
USD 132 K
Average funding amount
Project list item
Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Craig H Neilsen Foundation to Andrei Krassioukov

USD 300,000
2018 - 2021
Project list item
Closing the Primary Care Gap: Building Healthcare Provider Capacity to Better Serve Women with SCI

Craig H Neilsen Foundation to Chloe Slocum

USD 276,345
2018 - 2021
Project list item
Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

Craig H Neilsen Foundation to Heather Taylor

USD 300,000
2018 - 2021
Project list item
Acquisition of FES Bike for Therapy Services Gym in Ranken Jordan's new 26-Bed Wing

Craig H Neilsen Foundation to Jennifer Brown

USD 31,880
2018 - 2019
Project list item
Higher Ground Idaho Outdoors Summer Adaptive Sports Program

Craig H Neilsen Foundation to Kate Weihe

USD 68,500
2018 - 2019
Project list item
AXIS Immersion Apprenticeship

Craig H Neilsen Foundation to Robin Anderson

USD 80,425
2018 - 2019
Project list item
USA Hits 50 - Integrating USA Boccia Across the United States

Craig H Neilsen Foundation to Rebecca Prince

USD 30,000
2018 - 2019
Project list item
Patient Engagement Intervention in Inpatient Spinal Cord Injury Rehabilitation

Craig H Neilsen Foundation to Wing (Alex) Wong, Piper Hansen, Peggy Barco, Ana Baumann Walker, Eric Lenze, Wing (Alex) Wong

USD 199,941
2018 - 2020
Project list item
Providing community-based adaptive sports to improve the quality of life of those living with SCI

Craig H Neilsen Foundation to Dave Simonson

USD 100,000
2018 - 2019
Project list item
Building Independence Through Recreation

Craig H Neilsen Foundation to Elizabeth Jahp

USD 48,373
2018 - 2019
Project list item
Sportable Wheelchair Rugby Program

Craig H Neilsen Foundation to Grace Davis

USD 75,000
2018 - 2019
Project list item
Custom assistive devices for people with SCI on limited income

Craig H Neilsen Foundation to David Ostro

USD 39,200
2018 - 2019
Project list item
Adolescent and Young Adult Program for Patients with SCI

Craig H Neilsen Foundation to Norah Dixon

USD 30,000
2018 - 2019
Project list item
Off-Road Accessible Mountain Bike Program for Bike Town USA

Craig H Neilsen Foundation to Julie Taulman

USD 48,000
2018 - 2019
Project list item
WE Served: Women Veterans Retreat

Craig H Neilsen Foundation to Jen Purser

USD 100,000
2018 - 2019
Project list item
Adventure Awaits - Outdoor Inclusion in the Pacific Northwest

Craig H Neilsen Foundation to Pat Addabbo

USD 33,130
2018 - 2019
Project list item
Neuro Assistance Quality of Life - Houston Expansion

Craig H Neilsen Foundation to Cynthia Cooperman

USD 95,000
2018 - 2019
Project list item
Ability KC Adaptive Driving Program Expansion

Craig H Neilsen Foundation to Sarah Murphy

USD 88,378
2018 - 2019
Project list item
Northwest Wheelchair Tennis Association Event Support and SCI Player Development.

Craig H Neilsen Foundation to John McClaran

USD 35,200
2018 - 2019
Project list item
Adapting rowing ergs: customized solutions for people with SCI

Craig H Neilsen Foundation to Carolyn Sparrey

USD 55,000
2018 - 2019
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