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Project

Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

Funder: Craig H Neilsen Foundation

Funding period
USD 300 K
Funding amount
Abstract
Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource
Although it is well known that regular healthcare visits are important for wellness and improved quality of life. These visits may be even more important for women with SCI. In preparation for this proposal, we conducted a small focus group that identified needs and priorities specific to women with SCI. Our findings were overwhelming. Women with SCI reported extreme challenges obtaining accurate healthcare information, and identifying professionals who serve women with SCI in their community. These needs included outpatient specialties including primary care, OB GYN, and Urology. As a result, women with SCI often are not receiving the care that they need. Women in our focus group reported a great need for a resource that would provide education on how to select a health care professional in the community and a listing of professionals who meet these criteria. Dr. Taylor (PI) is the Director for the Texas Model Spinal Cord Injury System program at TIRR Memorial Hermann that serves 400 individuals with SCI annually, and the Chair for the Task Force on Women’s Health after SCI for the NIDILRR funded model systems and the ACRM’s SCI ISIG. As co-members of these groups, Drs. Taylor and Robinson-Whelen are well suited to address this need by leveraging their current SCI Model System collaboration on a national level. The purpose of this program is to develop a web-based resource in collaboration with professionals and women with SCI. The goals of this program are to: (1) conduct focus groups with women with SCI that will clarify and determine the top 3 healthcare service priorities that will be the focus of the project. Then, (2) in collaboration with the model systems directors and Task Force members Drs. Taylor Robinson-Whelen, and Kolakowsky-Hayner will develop criteria that women with SCI should consider when selecting a health care professional in these service priority areas. They will also collect links to resources that are currently available for women with SCI across the nation. Finally, (3) the educational information resources and criteria will be included on the website and will include listings of professionals known to serve women with SCI. We will invite our stakeholders of women with SCI to evaluate the usability and relevance of this web-based resource to make changes prior to the site going live. Once developed, the website will be sustainable and continue to grow beyond this project so that educational materials and professionals who serve women with SCI can continue to be added. We will measure goal three via online survey and by monitoring analytics such as the number of views, likes and re-posts on host and partner websites and social media to evaluate uptake. This resource will break some of the barriers women face when trying to obtain healthcare information, ultimately improving the quality of life for women with SCI. (CHN: COandI chn:wdg)

 
652
Projects
USD 120.3 M
Aggregated funding amount
USD 185 K
Average funding amount
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