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Similar Projects for

Project

Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Funder: Craig H Neilsen Foundation

Funding period
USD 300 K
Funding amount
Abstract
The proposed project "Breastfeeding and spinal cord injury: Establishing guidelines for health professionals and consumers" is a novel initiative that aims to address existing systemic gaps in education and services for mothers with spinal cord injury (SCI), with the ultimate goal of improving knowledge of clinicians/consumers through validated, evidence-based guidelines. Breastfeeding and SCI is under-researched: these guidelines will help establish standards for best clinical practice, provide education on breastfeeding after SCI via consumer recommendations and facilitate breastfeeding so that mothers with SCI can benefit from improved quality of life, full community participation and optimal health outcomes for mother and child. The aims are to: 1) develop and validate clinical practice guidelines (CPGs) and consumer recommendations for breastfeeding with SCI, 2) increase knowledge of medical professionals and mothers with SCI on managing SCI-related challenges to breastfeeding 3) develop sustainable dissemination plans of both guidelines and 4) improve policies/practices at international partner sites for comprehensive care to mothers with SCI, using a sustainable plan to implement and disseminate these guidelines. This project will strengthen relationships with international collaborators (SCI centres, research institutes, SCI consumer organizations) which have agreed to help develop and validate the guidelines. 8 project sites across 7 countries have committed to recruiting consumers and clinicians to share experiences (either personal or clinical expertise) with breastfeeding after SCI and critically evaluate and review guidelines at each stage of development. Another outcome is global dissemination through our partnership with SCIRE, an organization providing quality, evidence-based information to medical professionals and the community regarding SCI care. SCIRE's wide outreach and international recognition, as well as the commitment of partner sites to disseminate guidelines will result in sustainability and long-term impact beyond the 3-year grant period. Guidelines will be based on clinical expertise, consumer involvement and evidence obtained from our previously CNF-funded project "Motherhood after spinal cord injury: lactation, breastfeeding and autonomic dysreflexia" which ascertained the main SCI-related breastfeeding complications. This project evaluated many barriers to breastfeeding related to SCI, including physiological complications with lactation, mobility challenges and aspects of independent living (e.g. lack of care/assistance and balancing activities of daily living). It is vital to address these demonstrated challenges. Guidelines will increase support and knowledge needed by mothers with SCI to navigate breastfeeding challenges. This project will contribute to improved maternal services, access to care & knowledge, better quality of life and facilitation of independent living and breastfeeding success. (CHN: COandI chn:wdg)

 
497
Projects
USD 97.7 M
Aggregated funding amount
USD 197 K
Average funding amount
Project list item
Functional map of spinal cord stimulation

Craig H Neilsen Foundation to CJ Heckman

USD 600,000
2019 - 2022
Project list item
Neural Pathways and Recovery of Motor Function with Epidural Stimulation

Craig H Neilsen Foundation to Jessica Maria D'Amico, Claudia Angeli, Susan Harkema

USD 300,000
2019 - 2021
Project list item
Validation of the Spinal Cord Injury Functional Index (SCI-FI) Performance-By-Observation Measure

Craig H Neilsen Foundation to Mary Jane Mulcahey, Daniel Graves, Michael P Stillman

USD 600,000
2019 - 2022
Project list item
Plasticity Of Reticulospinal Pathways Following Spinal Cord Injury

Craig H Neilsen Foundation to Frederic Bretzner

USD 300,000
2019 - 2021
Project list item
Transcutaneous spinal stimulation to improve hand function after SCI

Craig H Neilsen Foundation to Chet Moritz, Fatma Inanici, Stephen P. Burns, Soshi Samejima, Christoph Hofstetter, Vicente Martinez

USD 300,000
2019 - 2021
Project list item
Neurofeedback to Assist Self-Regulation of Neuropathic Pain Post-SCI

Craig H Neilsen Foundation to Jeanne M. Zanca, Bing Yao, Jeffrey Zhang, Tibor Auer, Juan Segovia, Trevor Dyson-Hudson, Glenn Wylie

USD 299,000
2019 - 2021
Project list item
Spinal Cord Stimulation for Restoration of Bladder Function

Craig H Neilsen Foundation to Warren M Grill

USD 300,000
2019 - 2021
Project list item
The intraspinal serotonergic system regulates micturition reflexe after SCI

Craig H Neilsen Foundation to Yu-Shang Lee

USD 300,000
2019 - 2021
Project list item
Inflamm-aging and bone loss in a rodent model of spinal cord injury

Craig H Neilsen Foundation to Michelle Hook, Susan Bloomfield, Cedric G Geoffroy, Matthew Allen

USD 300,000
2019 - 2021
Project list item
Novel chemical approaches for specific targeting of CSPGs to restore function after SCI

Craig H Neilsen Foundation to Linda Carol Hsieh-Wilson, Elizabeth Jane Bradbury

USD 600,000
2019 - 2022
Project list item
Molecular control over motor circuit remodeling

Craig H Neilsen Foundation to Edmund Roy Hollis, Nadjat Serradj

USD 300,000
2019 - 2021
Project list item
Biological light stimulation to restore function after SCI

Craig H Neilsen Foundation to Ute Hochgeschwender, Eric D. Petersen, Griffin E. Kendziorski, Ute Hochgeschwender

USD 300,000
2019 - 2021
Project list item
Implanted Blood Pressure Sensor for Autonomic Dysreflexia Monitoring/Alarm

Craig H Neilsen Foundation to Kevin Lloyd Kilgore, Pedram Mohseni, Tina Vrabec, Greg Nemunaitis, Laleh Najafizadeh

USD 600,000
2019 - 2022
Project list item
Cervical Spinal Epidural Stimulation and Respiratory Recovery After SCI

Craig H Neilsen Foundation to Erica Dale, Erica Dale

USD 300,000
2019 - 2021
Project list item
Intermittent Hypoxia, Respiratory and Motor Plasticity, and Sleep Apnea

Craig H Neilsen Foundation to Shirin Shafazand, Mark Nash, Monica A Perez

USD 300,000
2019 - 2021
Project list item
Barriers and facilitators to effective bowel care in individuals with spinal cord injury

Craig H Neilsen Foundation to Victoria Elizabeth Claydon, Chris McBride, Rhonda Willms, Heather Gainforth, Maureen McGrath, Vera-Ellen Lucci

USD 95,000
2019 - 2021
Project list item
Promoting Sleep and Health Needs of Young Adults with Spinal Cord Injury

Craig H Neilsen Foundation to Alicia M January, Lawrence Cabell Vogel, Kathy Zebracki

USD 190,000
2019 - 2021
Project list item
Psychosocial, cognitive, and behavioral consequences of sleep-disordered breathing in SCI people

Craig H Neilsen Foundation to Julio Cesar Furlan, Mark I Boulos, Sander L Hitizg, B. Catharine Craven

USD 200,000
2019 - 2021
Project list item
Pain education for improving pain health literacy and quality of life after spinal cord injury

Craig H Neilsen Foundation to Eva Widerstrom-Noga, Lindsey Calle-Coule, Alberto Martinez-Arizala, Kimberly Anderson, Salome Perez

USD 400,000
2019 - 2022
Project list item
SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Craig H Neilsen Foundation to Jeanne M. Hoffman, Amy Starosta

USD 400,000
2019 - 2022
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