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Project

Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Funder: Craig H Neilsen Foundation

Funding period
USD 300 K
Funding amount
Abstract
The proposed project "Breastfeeding and spinal cord injury: Establishing guidelines for health professionals and consumers" is a novel initiative that aims to address existing systemic gaps in education and services for mothers with spinal cord injury (SCI), with the ultimate goal of improving knowledge of clinicians/consumers through validated, evidence-based guidelines. Breastfeeding and SCI is under-researched: these guidelines will help establish standards for best clinical practice, provide education on breastfeeding after SCI via consumer recommendations and facilitate breastfeeding so that mothers with SCI can benefit from improved quality of life, full community participation and optimal health outcomes for mother and child. The aims are to: 1) develop and validate clinical practice guidelines (CPGs) and consumer recommendations for breastfeeding with SCI, 2) increase knowledge of medical professionals and mothers with SCI on managing SCI-related challenges to breastfeeding 3) develop sustainable dissemination plans of both guidelines and 4) improve policies/practices at international partner sites for comprehensive care to mothers with SCI, using a sustainable plan to implement and disseminate these guidelines. This project will strengthen relationships with international collaborators (SCI centres, research institutes, SCI consumer organizations) which have agreed to help develop and validate the guidelines. 8 project sites across 7 countries have committed to recruiting consumers and clinicians to share experiences (either personal or clinical expertise) with breastfeeding after SCI and critically evaluate and review guidelines at each stage of development. Another outcome is global dissemination through our partnership with SCIRE, an organization providing quality, evidence-based information to medical professionals and the community regarding SCI care. SCIRE's wide outreach and international recognition, as well as the commitment of partner sites to disseminate guidelines will result in sustainability and long-term impact beyond the 3-year grant period. Guidelines will be based on clinical expertise, consumer involvement and evidence obtained from our previously CNF-funded project "Motherhood after spinal cord injury: lactation, breastfeeding and autonomic dysreflexia" which ascertained the main SCI-related breastfeeding complications. This project evaluated many barriers to breastfeeding related to SCI, including physiological complications with lactation, mobility challenges and aspects of independent living (e.g. lack of care/assistance and balancing activities of daily living). It is vital to address these demonstrated challenges. Guidelines will increase support and knowledge needed by mothers with SCI to navigate breastfeeding challenges. This project will contribute to improved maternal services, access to care & knowledge, better quality of life and facilitation of independent living and breastfeeding success. (CHN: COandI chn:wdg)

 
592
Projects
USD 108.9 M
Aggregated funding amount
USD 184 K
Average funding amount
Project list item
Determining spinal alterations in sexual reflex control.

Craig H Neilsen Foundation to Lique Martina Coolen, Sid Gaikwad, James Walker Wiggins, James Walker Wiggins

USD 599,976
2019 - 2022
Project list item
Closing the Primary Care Gap: Building Healthcare Provider Capacity to Better Serve Women with SCI

Craig H Neilsen Foundation to Chloe Slocum

USD 276,345
2018 - 2021
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Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

Craig H Neilsen Foundation to Heather Taylor

USD 300,000
2018 - 2021
Project list item
Paddle Boarding, Camping, Skiing: New and Expanded Programs for Individuals with Spinal Cord Injury

Craig H Neilsen Foundation to Karen Kaminski

USD 69,768
2018 - 2019
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Path to Empowerment for Consumers with SCI

Craig H Neilsen Foundation to Kelly Buckland

USD 100,000
2018 - 2019
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ICD Assistive Technology Upgrade

Craig H Neilsen Foundation to Susan Scheer

USD 71,000
2018 - 2019
Project list item
Fresh Air and Freedom: Offering Winter Sports Opportunities to Participants with SCI

Craig H Neilsen Foundation to Emily Zeis

USD 30,260
2018 - 2019
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ARISE Adaptive Design

Craig H Neilsen Foundation to Emily Zaengle

USD 50,000
2018 - 2019
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SCI Recreation & Fitness Outreach Project

Craig H Neilsen Foundation to rick smith

USD 55,000
2018 - 2019
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Off-Road Accessible Mountain Bike Program for Bike Town USA

Craig H Neilsen Foundation to Julie Taulman

USD 48,000
2018 - 2019
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ON DISPLAY

Craig H Neilsen Foundation to Jerron Herman

USD 35,000
2018 - 2019
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LipSync Assistive Technology Deployment across Canada

Craig H Neilsen Foundation to Chad Leaman

USD 73,600
2018 - 2019
Project list item
ZeroG

Craig H Neilsen Foundation to Carol Bonino

USD 100,000
2018 - 2019
Project list item
Investment Grants for Creative Entrepreneurs with SCI

Craig H Neilsen Foundation to Lauren Bailey

USD 100,000
2018 - 2019
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Adaptive Mountain Biking For All

Craig H Neilsen Foundation to Maggie Palchak

USD 62,800
2018 - 2019
Project list item
Building Independence Through Recreation

Craig H Neilsen Foundation to Elizabeth Jahp

USD 48,373
2018 - 2019
Project list item
Acquisition of FES Bike for Therapy Services Gym in Ranken Jordan's new 26-Bed Wing

Craig H Neilsen Foundation to Jennifer Brown

USD 31,880
2018 - 2019
Project list item
SCI Adaptiive Sports Expansion in Alaska

Craig H Neilsen Foundation to Jeff Dick

USD 84,733
2018 - 2019
Project list item
Accessible Van for Therapeutic Recreation

Craig H Neilsen Foundation to Nicole Swaggerty

USD 50,000
2018 - 2019
Project list item
Wellness support for persons with SCI and their caregivers

Craig H Neilsen Foundation to Cathy O Flanagan

USD 57,400
2018 - 2019
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