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Similar Projects for

Project

Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Funder: Craig H Neilsen Foundation

Funding period
USD 300 K
Funding amount
Abstract
The proposed project "Breastfeeding and spinal cord injury: Establishing guidelines for health professionals and consumers" is a novel initiative that aims to address existing systemic gaps in education and services for mothers with spinal cord injury (SCI), with the ultimate goal of improving knowledge of clinicians/consumers through validated, evidence-based guidelines. Breastfeeding and SCI is under-researched: these guidelines will help establish standards for best clinical practice, provide education on breastfeeding after SCI via consumer recommendations and facilitate breastfeeding so that mothers with SCI can benefit from improved quality of life, full community participation and optimal health outcomes for mother and child. The aims are to: 1) develop and validate clinical practice guidelines (CPGs) and consumer recommendations for breastfeeding with SCI, 2) increase knowledge of medical professionals and mothers with SCI on managing SCI-related challenges to breastfeeding 3) develop sustainable dissemination plans of both guidelines and 4) improve policies/practices at international partner sites for comprehensive care to mothers with SCI, using a sustainable plan to implement and disseminate these guidelines. This project will strengthen relationships with international collaborators (SCI centres, research institutes, SCI consumer organizations) which have agreed to help develop and validate the guidelines. 8 project sites across 7 countries have committed to recruiting consumers and clinicians to share experiences (either personal or clinical expertise) with breastfeeding after SCI and critically evaluate and review guidelines at each stage of development. Another outcome is global dissemination through our partnership with SCIRE, an organization providing quality, evidence-based information to medical professionals and the community regarding SCI care. SCIRE's wide outreach and international recognition, as well as the commitment of partner sites to disseminate guidelines will result in sustainability and long-term impact beyond the 3-year grant period. Guidelines will be based on clinical expertise, consumer involvement and evidence obtained from our previously CNF-funded project "Motherhood after spinal cord injury: lactation, breastfeeding and autonomic dysreflexia" which ascertained the main SCI-related breastfeeding complications. This project evaluated many barriers to breastfeeding related to SCI, including physiological complications with lactation, mobility challenges and aspects of independent living (e.g. lack of care/assistance and balancing activities of daily living). It is vital to address these demonstrated challenges. Guidelines will increase support and knowledge needed by mothers with SCI to navigate breastfeeding challenges. This project will contribute to improved maternal services, access to care & knowledge, better quality of life and facilitation of independent living and breastfeeding success. (CHN: COandI chn:wdg)

 
449
Projects
USD 83.2 M
Aggregated funding amount
USD 185 K
Average funding amount
Project list item
Craig Caregiver Assessment of Rewards and Effort (C2ARE) - Validation of a new tool to assess caregi

Craig H Neilsen Foundation to Susie Charlifue, Kimberley R. Monden, Richard Goldstein, Susan Charlifue

USD 400,000
2019 - 2022
Project list item
Executive functioning and self-management of health and participation for individuals with SCI

Craig H Neilsen Foundation to Michelle A Meade, James Krause, Seth Warschausky, Stephen Schilling, Carrie Pilarksi

USD 200,000
2019 - 2021
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Promoting Sleep and Health Needs of Young Adults with Spinal Cord Injury

Craig H Neilsen Foundation to Alicia M January, Lawrence Cabell Vogel, Kathy Zebracki

USD 190,000
2019 - 2021
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Pain education for improving pain health literacy and quality of life after spinal cord injury

Craig H Neilsen Foundation to Eva Widerstrom-Noga, Alberto Martinez-Arizala, Lindsey Calle-Coule, Salome Perez, Kimberly Anderson

USD 400,000
2019 - 2022
Project list item
Caregiver Adaptation to Caring for a Child with SCI Undergoing Activity-based Therapy

Craig H Neilsen Foundation to Andrea L Behrman, Kyle Brothers, Deborah Davis

USD 400,000
2019 - 2022
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SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Craig H Neilsen Foundation to Jeanne M. Hoffman, Amy Starosta

USD 400,000
2019 - 2022
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Enhancing Wheelchair Education in Canadian Occupational Therapy University Programs

Craig H Neilsen Foundation to Paula Rushton

USD 49,251
2019 - 2020
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Pathways to learning: a unique recreational exercise certification program for individuals with SCI

Craig H Neilsen Foundation to Ray de Leon

USD 49,837
2018 - 2019
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Closing the Primary Care Gap: Building Healthcare Provider Capacity to Better Serve Women with SCI

Craig H Neilsen Foundation to Chloe Slocum

USD 276,345
2018 - 2021
Project list item
Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

Craig H Neilsen Foundation to Heather Taylor

USD 300,000
2018 - 2021
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Northwest Wheelchair Tennis Association Event Support and SCI Player Development.

Craig H Neilsen Foundation to John McClaran

USD 35,200
2018 - 2019
Project list item
Adventure Awaits - Outdoor Inclusion in the Pacific Northwest

Craig H Neilsen Foundation to Pat Addabbo

USD 33,130
2018 - 2019
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Improving Health and Wellness of Individuals with SCI

Craig H Neilsen Foundation to Lisa Followay

USD 62,460
2018 - 2019
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Adapting rowing ergs: customized solutions for people with SCI

Craig H Neilsen Foundation to Carolyn Sparrey

USD 55,000
2018 - 2019
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Adaptive Mountain Biking For All

Craig H Neilsen Foundation to Maggie Palchak

USD 62,800
2018 - 2019
Project list item
Patient Engagement Intervention in Inpatient Spinal Cord Injury Rehabilitation

Craig H Neilsen Foundation to Wing (Alex) Wong, Piper Hansen, Peggy Barco, Ana Baumann Walker, Eric Lenze, Wing (Alex) Wong

USD 199,941
2018 - 2020
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Enhancing peer mentoring to promote independence and community participation after rehabilitation

Craig H Neilsen Foundation to Katherine Froehlich-Grobe

USD 75,000
2018 - 2019
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Accessible Van for Therapeutic Recreation

Craig H Neilsen Foundation to Nicole Swaggerty

USD 50,000
2018 - 2019
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Rowing for Rehabilitation, Recreation and Competition

Craig H Neilsen Foundation to Patrick McNerney

USD 100,000
2018 - 2019
Project list item
Outdoors for All Foundation Adaptive Mountain Bike Program for Individuals with SCI

Craig H Neilsen Foundation to Jackie Molzhon

USD 49,000
2018 - 2019
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