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Project

Pain education for improving pain health literacy and quality of life after spinal cord injury

Funder: Craig H Neilsen Foundation

Funding period
USD 400 K
Funding amount
Abstract
PROJECT BACKGROUND: Up to 80% of people develop chronic pain within their first year after a spinal cord injury (SCI). Although all the pain types that occur after injury can be problematic, the persistent neuropathic pain types in particular, negatively influence quality of life and independent living after SCI by significantly interfering with sleep, mood, physical and social activities. Most pharmacological approaches only have limited effectiveness in reducing the intensity of neuropathic pain in this population, optimal pain management strategies need to incorporate multiple ways to reduce pain. A large proportion of those who experience SCI-related neuropathic pain consider information about pain and how to best manage pain to be critically important and a top priority in the continuum of in-patient through outpatient care. Indeed, health literacy, i.e., “the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions” can positively affect quality of life. Multimodal pain management strategies incorporating pain education can facilitate optimal treatment decisions and make pain more manageable. HYPOTHESIS AND/OR GOAL: The goal of this proposal is to develop a relevant educational resource for improving pain health literacy and quality of life after SCI. This work will provide a basis for future clinical trials to test the effectiveness of the SeePain in reducing the impact of chronic pain, either separately or in combination with an intervention. SPECIFIC AIMS/OBJECTIVES: We have developed a preliminary educational tool (SeePain). The intent of this tool is to: (1) Provide information regarding pain and its treatments, including self-management and self-remedies for those with SCI and their significant others; and (2) Facilitate patient-healthcare provider communication regarding SCI-related pain, treatment options and its impact on daily life. The SeePain has not been systematically evaluated by primary stakeholders regarding its content, relevance, comprehensiveness, and format. Specific Aim 1: Qualitatively evaluate the SeePain with respect to comprehensiveness, content, relevance, and format. Specific Aim 2: Quantitatively evaluate the generalizability to a larger population by quantifying the agreement with the overall format and suggested revisions in a large survey. STUDY DESIGN/METHODOLOGY: Mixed-methods EVALUATION CRITERIA: Qualitative interviews, survey, pain outcome measures. EXPECTED RESULTS: We expect that the proposed study will provide relevant suggestions for an improved version of the SeePain. We also expect that the survey will improve generalizability by quantifying the agreement with the comprehensiveness, content, relevance, and format, and suggested revisions of the SeePain PROJECT’S RELEVANCE ON HOW RESULTS WILL IMPACT THE SCI RESEARCH FIELD AND/OR THOSE LIVING WITH SCI: We expect that a patient/consumer-centered educational resource aimed to facilitate health literacy will help people to overcome significant barriers to improve quality of life by making chronic pain more manageable at any stage of SCI. (CHN: PSR chn:wdg)

 
201
Projects
USD 42.0 M
Aggregated funding amount
USD 209 K
Average funding amount
Project list item
Transcutaneous spinal stimulation to improve hand function after SCI

Craig H Neilsen Foundation to Chet Moritz, Fatma Inanici, Stephen P. Burns, Soshi Samejima, Christoph Hofstetter, Vicente Martinez

USD 300,000
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Neurofeedback to Assist Self-Regulation of Neuropathic Pain Post-SCI

Craig H Neilsen Foundation to Jeanne M. Zanca, Bing Yao, Jeffrey Zhang, Tibor Auer, Juan Segovia, Trevor Dyson-Hudson, Glenn Wylie

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Spinal Cord Stimulation for Restoration of Bladder Function

Craig H Neilsen Foundation to Warren M Grill

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USD 300,000
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Promoting Sleep and Health Needs of Young Adults with Spinal Cord Injury

Craig H Neilsen Foundation to Alicia M January, Lawrence Cabell Vogel, Kathy Zebracki

USD 190,000
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Psychosocial, cognitive, and behavioral consequences of sleep-disordered breathing in SCI people

Craig H Neilsen Foundation to Julio Cesar Furlan, Mark I Boulos, Sander L Hitizg, B. Catharine Craven

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SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Craig H Neilsen Foundation to Jeanne M. Hoffman, Amy Starosta

USD 400,000
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Caregiver Adaptation to Caring for a Child with SCI Undergoing Activity-based Therapy

Craig H Neilsen Foundation to Andrea L Behrman, Deborah Davis, Kyle Brothers

USD 400,000
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Executive functioning and self-management of health and participation for individuals with SCI

Craig H Neilsen Foundation to Michelle A Meade, James Krause, Seth Warschausky, Stephen Schilling, Carrie Pilarksi

USD 200,000
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Internet-delivered cognitive behavioural therapy for persons with spinal cord injury: Randomized con

Craig H Neilsen Foundation to Heather Hadjistavropoulos, Gary Linassi, Eldon Loh, Denise Fyffe, Karen Anzai, Katherine Knox, Kelly Tennant, Marcie Nugent, Dalton L. Wolfe, Rebecca Charbonneau, Robert Teasell, Ryan Sturgeon, Steve Orenczuk, Swati Mehta

USD 386,000
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Treatment of Depression Post-SCI: Retrospective Analysis and Feasibility Trial

Craig H Neilsen Foundation to Catherine Jefferson VanDerwerker, Kit Simpson, Chris Gregory, James Krause

USD 150,000
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Determining spinal alterations in sexual reflex control.

Craig H Neilsen Foundation to Lique Martina Coolen, James Walker Wiggins, Sid Gaikwad, James Walker Wiggins

USD 599,976
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Pathways to learning: a unique recreational exercise certification program for individuals with SCI

Craig H Neilsen Foundation to Ray de Leon

USD 49,837
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Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

Craig H Neilsen Foundation to Heather Taylor

USD 300,000
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Closing the Primary Care Gap: Building Healthcare Provider Capacity to Better Serve Women with SCI

Craig H Neilsen Foundation to Chloe Slocum

USD 276,345
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Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Craig H Neilsen Foundation to Andrei Krassioukov

USD 300,000
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ValleyGO! Adaptive Sports Program

Craig H Neilsen Foundation to Teri Todd

USD 72,951
2018 - 2019
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ZeroG

Craig H Neilsen Foundation to Carol Bonino

USD 100,000
2018 - 2019
Project list item
Providing community-based adaptive sports to improve the quality of life of those living with SCI

Craig H Neilsen Foundation to Dave Simonson

USD 100,000
2018 - 2019
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