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Project

Pain education for improving pain health literacy and quality of life after spinal cord injury

Funder: Craig H Neilsen Foundation

Funding period
USD 400 K
Funding amount
Abstract
PROJECT BACKGROUND: Up to 80% of people develop chronic pain within their first year after a spinal cord injury (SCI). Although all the pain types that occur after injury can be problematic, the persistent neuropathic pain types in particular, negatively influence quality of life and independent living after SCI by significantly interfering with sleep, mood, physical and social activities. Most pharmacological approaches only have limited effectiveness in reducing the intensity of neuropathic pain in this population, optimal pain management strategies need to incorporate multiple ways to reduce pain. A large proportion of those who experience SCI-related neuropathic pain consider information about pain and how to best manage pain to be critically important and a top priority in the continuum of in-patient through outpatient care. Indeed, health literacy, i.e., “the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions” can positively affect quality of life. Multimodal pain management strategies incorporating pain education can facilitate optimal treatment decisions and make pain more manageable. HYPOTHESIS AND/OR GOAL: The goal of this proposal is to develop a relevant educational resource for improving pain health literacy and quality of life after SCI. This work will provide a basis for future clinical trials to test the effectiveness of the SeePain in reducing the impact of chronic pain, either separately or in combination with an intervention. SPECIFIC AIMS/OBJECTIVES: We have developed a preliminary educational tool (SeePain). The intent of this tool is to: (1) Provide information regarding pain and its treatments, including self-management and self-remedies for those with SCI and their significant others; and (2) Facilitate patient-healthcare provider communication regarding SCI-related pain, treatment options and its impact on daily life. The SeePain has not been systematically evaluated by primary stakeholders regarding its content, relevance, comprehensiveness, and format. Specific Aim 1: Qualitatively evaluate the SeePain with respect to comprehensiveness, content, relevance, and format. Specific Aim 2: Quantitatively evaluate the generalizability to a larger population by quantifying the agreement with the overall format and suggested revisions in a large survey. STUDY DESIGN/METHODOLOGY: Mixed-methods EVALUATION CRITERIA: Qualitative interviews, survey, pain outcome measures. EXPECTED RESULTS: We expect that the proposed study will provide relevant suggestions for an improved version of the SeePain. We also expect that the survey will improve generalizability by quantifying the agreement with the comprehensiveness, content, relevance, and format, and suggested revisions of the SeePain PROJECT’S RELEVANCE ON HOW RESULTS WILL IMPACT THE SCI RESEARCH FIELD AND/OR THOSE LIVING WITH SCI: We expect that a patient/consumer-centered educational resource aimed to facilitate health literacy will help people to overcome significant barriers to improve quality of life by making chronic pain more manageable at any stage of SCI. (CHN: PSR chn:wdg)

 
180
Projects
USD 38.2 M
Aggregated funding amount
USD 212 K
Average funding amount
Project list item
Executive functioning and self-management of health and participation for individuals with SCI

Craig H Neilsen Foundation to Michelle A Meade, James Krause, Seth Warschausky, Stephen Schilling, Carrie Pilarksi

USD 200,000
2019 - 2021
Project list item
SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Craig H Neilsen Foundation to Jeanne M. Hoffman, Amy Starosta

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USD 599,976
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USD 276,345
2018 - 2021
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Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource

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Craig H Neilsen Foundation to Lisa Followay

USD 62,460
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Enhancing peer mentoring to promote independence and community participation after rehabilitation

Craig H Neilsen Foundation to Katherine Froehlich-Grobe

USD 75,000
2018 - 2019
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Education Modules for the First Steps After SCI

Craig H Neilsen Foundation to Brittany Déjean

USD 37,100
2018 - 2019
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Craig H Neilsen Foundation to Elizabeth Jahp

USD 48,373
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Craig H Neilsen Foundation to West Livaudais

USD 49,500
2018 - 2019
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Providing community-based adaptive sports to improve the quality of life of those living with SCI

Craig H Neilsen Foundation to Dave Simonson

USD 100,000
2018 - 2019
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Craig H Neilsen Foundation to Carol Bonino

USD 100,000
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Craig H Neilsen Foundation to Kelly Buckland

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Craig H Neilsen Foundation to Teri Todd

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USD 299,495
2018 - 2020
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The efficacy of hypnotic cognitive therapy for chronic pain in SCI

Craig H Neilsen Foundation to Charles H Bombardier, Mark P. Jensen, Charles H Bombardier

USD 398,310
2018 - 2021
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Preventing changes in mental health in a rat model of spinal cord injury

Craig H Neilsen Foundation to Karim Fouad

USD 300,000
2018 - 2020
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MECHANISMS OF OPIOID RESISTANCE AFTER SPINAL CORD INJURY

Craig H Neilsen Foundation to Carmen W Dessauer, Edgar Walters, Michelle Hook

USD 600,000
2018 - 2021
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Neural Progenitor Cells for Mitigating Pain after Spinal Cord Injury

Craig H Neilsen Foundation to Jennifer N Dulin, Jennifer N Dulin, James Grau

USD 299,135
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