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Project

Promoting Sleep and Health Needs of Young Adults with Spinal Cord Injury

Funder: Craig H Neilsen Foundation

Funding period
USD 190 K
Funding amount
Abstract
Unhealthy lifestyle behaviors, such as inadequate sleep, poor nutrition, and insufficient activity are common issues in the general population. Young-adults (ages 18-29) with SCI may be particularly vulnerable to unhealthy lifestyle behaviors because of their age and the physical and psychosocial sequelae related to their injury. The harmful effects of poor lifestyle habits on emotional, physical, and social functioning have been well documented. Of particular concern, these behaviors are linked to the most common and often fatal chronic disease. However, poor sleep, unhealthy diet, and sedentary behavior are all potentially modifiable behaviors. Additionally, there are a number of evidence-based therapeutic approaches to help individuals change unhealthy behavior patterns. We hypothesize that unhealthy lifestyle behaviors are common among young adults with pediatric-onset SCI and that these behaviors are associated with decreased physical and psychological well-being. Further, we hypothesize a brief evidenced-based intervention focused on increasing healthy behaviors will be feasible and received positively by young adults with SCI. The overall objective of this application is to explore the prevalence of unhealthy lifestyle behaviors (sleep, activity, and diet) among young-adults with pediatric-onset SCI, asses the health outcomes associated with unhealthy behavior, develop a brief intervention to improve unhealthy behaviors, and to obtain preliminary data on the intervention’s efficacy, feasibility, and acceptability in a small pilot study. The proposed project will accomplish these specific aims by utilizing a combination of objective and subjective evaluations tools to track the pervasiveness of unhealthy lifestyle behavior patterns among a cohort of young adults with SCI as compared to a control group of peers. Participants will complete a series of standardized self-report forms and will be monitored for a week using actigraph technology that quantifies sleep and time spent engaged in physical activity. Using motivational interviewing and therapeutic feedback techniques, a health coach will assist participants in setting healthy and realistic goals relevant to improving current behaviors. The proposed intervention in this application is simple, affordable, and easily transportable across a variety of clinical and non-clinical settings. We expect that the results of this project will show that the intervention is feasible, well liked, and associated with improvements in behavior, the efficacy of which can be evaluated in a larger, future randomized-control trial. Ultimately, we believe that by attending to the unique sleep, diet and activity needs of young-adults with pediatric-onset SCI we can potentially improve health and functioning, leading to greater well-being and better quality of life. Additionally, the reduction in health risks and complications associated with healthy behavior change has the potential to decrease long-term health care costs associated with complex medical care. (CHN: PSR chn:wdg)

 
160
Projects
USD 32.4 M
Aggregated funding amount
USD 203 K
Average funding amount
Project list item
Craig Caregiver Assessment of Rewards and Effort (C2ARE) - Validation of a new tool to assess caregi

Craig H Neilsen Foundation to Susie Charlifue, Kimberley R. Monden, Richard Goldstein, Susan Charlifue

USD 400,000
2019 - 2022
Project list item
Executive functioning and self-management of health and participation for individuals with SCI

Craig H Neilsen Foundation to Michelle A Meade, James Krause, Seth Warschausky, Stephen Schilling, Carrie Pilarksi

USD 200,000
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Pain education for improving pain health literacy and quality of life after spinal cord injury

Craig H Neilsen Foundation to Eva Widerstrom-Noga, Alberto Martinez-Arizala, Lindsey Calle-Coule, Salome Perez, Kimberly Anderson

USD 400,000
2019 - 2022
Project list item
Caregiver Adaptation to Caring for a Child with SCI Undergoing Activity-based Therapy

Craig H Neilsen Foundation to Andrea L Behrman, Kyle Brothers, Deborah Davis

USD 400,000
2019 - 2022
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SCI Thrive: Efficacy of a Peer-led Online Self-Management Program

Craig H Neilsen Foundation to Jeanne M. Hoffman, Amy Starosta

USD 400,000
2019 - 2022
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Biofeedback for treatment of anxiety associated with chronic spinal cord injury

Craig H Neilsen Foundation to Kimberley R. Monden, Jason Michael Nupp, Leslie Morse, Asma Ali

USD 200,000
2019 - 2021
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Pathways to learning: a unique recreational exercise certification program for individuals with SCI

Craig H Neilsen Foundation to Ray de Leon

USD 49,837
2018 - 2019
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Closing the Primary Care Gap: Building Healthcare Provider Capacity to Better Serve Women with SCI

Craig H Neilsen Foundation to Chloe Slocum

USD 276,345
2018 - 2021
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Breastfeeding and Spinal Cord Injury: Establishing guidelines for health professionals and consumers

Craig H Neilsen Foundation to Andrei Krassioukov

USD 300,000
2018 - 2021
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Northwest Wheelchair Tennis Association Event Support and SCI Player Development.

Craig H Neilsen Foundation to John McClaran

USD 35,200
2018 - 2019
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Adapting rowing ergs: customized solutions for people with SCI

Craig H Neilsen Foundation to Carolyn Sparrey

USD 55,000
2018 - 2019
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Healthy and Active Lifestyles for Individuals with SCI

Craig H Neilsen Foundation to Diana Helt

USD 30,000
2018 - 2019
Project list item
Patient Engagement Intervention in Inpatient Spinal Cord Injury Rehabilitation

Craig H Neilsen Foundation to Wing (Alex) Wong, Piper Hansen, Peggy Barco, Ana Baumann Walker, Eric Lenze, Wing (Alex) Wong

USD 199,941
2018 - 2020
Project list item
Outdoors for All Foundation Adaptive Mountain Bike Program for Individuals with SCI

Craig H Neilsen Foundation to Jackie Molzhon

USD 49,000
2018 - 2019
Project list item
Adolescent and Young Adult Program for Patients with SCI

Craig H Neilsen Foundation to Norah Dixon

USD 30,000
2018 - 2019
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Mississippi WheelCats

Craig H Neilsen Foundation to Mark Roth

USD 62,020
2018 - 2019
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Higher Ground Idaho Outdoors Summer Adaptive Sports Program

Craig H Neilsen Foundation to Kate Weihe

USD 68,500
2018 - 2019
Project list item
SCI Recreation & Fitness Outreach Project

Craig H Neilsen Foundation to rick smith

USD 55,000
2018 - 2019
Project list item
Providing community-based adaptive sports to improve the quality of life of those living with SCI

Craig H Neilsen Foundation to Dave Simonson

USD 100,000
2018 - 2019
Project list item
Health, Independence, and Community through Nordic Skiing

Craig H Neilsen Foundation to Marc Mast

USD 33,975
2018 - 2019
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